Resources related to Katelyn Norman Childhood Cancer Foundation
Katelyn Norman Foundation
After nearly 3 years in business, Katelyn Norman Childhood Cancer Foundation, a nonprofit corporation, has decided to close its doors. We can’t fully express our deep gratitude for your support of our work. Working with the community and the local organizations has been nothing but an absolute pleasure.
Our last effective day of business was January 1, 2015. In East Tennessee, we are so happy to see that most of the support for youth is expressed through donations to East Tennessee Children's Hospital and the Boys and Girls Club of Greater Knoxville. Upon closing our operations, all of our funds were donated among East Tennessee Children's Hospital, CureSearch, and the Children's Miracle Network Hospitals.
For those looking for similar services, we have created a list of childhood cancer organizations that can service you and your families needs. While we are saddened by the closure, we have no regrets and look forward to seeing the work that continues by the other organizations.
Thank you again for your support, and may God bless you all. Live Like Kate.
American Childhood Cancer Foundation (formerly Candlelighters)
PO Box 498
Kensington, MD 20895-0498(800) 366-2223
Founded in 1970, ACCO/Candlelighters has more than 40,000 members worldwide. Some of the free services provided by Candlelighters are a yearly bibliography and resource guide, quarterly newsletter, and various handbooks to help families of children with cancer.
Childhood Cancer Canada
21 St. Clair Ave East, Suite 801
Toronto, ON Canada M4T 1L9
Provides some of the same services as US ACCO.
Alex's Lemonade Stand (ALSF)
Alex's Lemonade Stand Foundation
333 E. Lancaster Ave., #414
Wynnewood, PA 19096
Alex's Lemonade Stand Foundation (ALSF) emerged from the front yard lemonade stand of cancer patient Alexandra "Alex" Scott (1996-2004). ALSF is now a national fundraising movement, raising more than $80 million and funding over 450 research projects. ALSF has also expanded to providing free resources for families affected by childhood cancer.
American Cancer Society
1599 Clifton Road NE
Atlanta, GA 30329-4251
Has a national network of employees and volunteers who implement research, education, and patient service programs. Although programs differ according to state and province, some widely available programs are patient-to-patient visitation, transportation to appointments, housing near treatment centers, equipment and supplies, support groups, literature on a large variety of topics, summer camps for children with cancer, research and educational programs.
Canadian Cancer Society
565 W. 10th Avenue
Vancouver, BC Canada V5Z 4J4
(888) 939-3333 or (604) 872-4400
Provides some of same services as the US Cancer Society.
Childhood Cancer Ombudsman Program
P.O. Box 595
Burgess, VA 22432
Fax: (804) 580-2502
This free service helps children with cancer and their families who are experiencing difficulties in gaining access to appropriate education, medical care, healthcare cost coverage, and meaningful employment. Services include medical library searches, a second opinion program, and help resolving problems with insurance or discrimination.
National Children's Cancer Society
The National Children's Cancer Society helps children with cancer and their families by providing financial assistance, advocacy, education, and emotional support.
The National Children's Cancer Society
1015 Locust, Suite 600
St. Louis, MO 63101
314.241.1600 (telephone) or 1-800-FAMILY
Starlight Starbright helps seriously ill children and their families cope with their pain, fear and isolation through entertainment, education and family activities. Not cancer-specific. Good sections for teens (see Starlight Starbright on the teens page.)
Chai Lifeline believes that seriously ill children (including children with cancer) need and deserve as happy and normal a childhood as possible. Their programs include: Camp Simcha, professional case management, learning programs, family retreats, insurance support service, wish granting, sibling support, and community services such as volunteer training. Families are invited to contact Chai Lifeline at 1 877 CHAI LIFE or email email@example.com for more information.
CureSearch raises funds for childhood cancer research as well as awareness.. The web site has information on childhood cancer and its treatment.
Friends of Scott
Friends of Scott (San Diego, CA) provides emotional and financial support for young people with cancer and their families with face-to-face groups, a prom and other special events, scholarships, and a gas and grocery fund. See the web site for current details.
Emmanuel Cancer Foundation
The Emmanuel Cancer Foundation (ECF) helps New Jersey families cope with the emotional, material and, in some cases, financial burdens that arise when struggling with a diagnosis of pediatric cancer.
CancerCare is a national non-profit organization whose mission is to provide free professional help to people with all cancers through counseling, education, information and referral and direct financial assistance.
Different Gilda's Clubs have different programs for children with cancer and their families, but potentially a clubhouse could have groups for children and teens with cancer, groups for siblings, and groups for parents. Also a big part of Gilda's Club is workshops and classes - anything from art workshops to informational type things (like Ask the Doctor, Insurance Q & A, etc) and social events. Visit the Gilda's Club Worldwide website (www.gildasclub.org) and check if there's a Gilda's Club in your area, then call the individual clubhouse to find out what they offer.